{"id":15342,"date":"2021-01-24T12:18:33","date_gmt":"2021-01-24T12:18:33","guid":{"rendered":"https:\/\/test.otpor.media\/index.php\/2021\/01\/24\/https-otpor-media-toliko-o-evidenciji-namjernice-za-zivot-su-im-puno-skuplje-zzh-nema-stvarni-broj-tih-osoba\/"},"modified":"2024-07-03T22:20:07","modified_gmt":"2024-07-03T22:20:07","slug":"https-otpor-media-toliko-o-evidenciji-namjernice-za-zivot-su-im-puno-skuplje-zzh-nema-stvarni-broj-tih-osoba","status":"publish","type":"post","link":"https:\/\/otpor.media\/?p=15342","title":{"rendered":"TOLIKO O EVIDENCIJI: Namjernice za \u017eivot su im puno skuplje, \u017dZH nema stvarni broj tih osoba!"},"content":{"rendered":"\n

Celijakija je naj\u010de\u0161\u0107a kroni\u010dna gastroenterolo\u0161ka bolest, ali se o njoj premalo govori i premalo zna. Mnogi oboljelih ne znaju da su bolesni, a ako se bolest ne lije\u010di mogu nastati ozbiljni zdravstveni problemi.<\/p>\n\n\n\n

Desetlje\u0107e za postavljanje dijagnoze<\/span><\/strong><\/p>\n\n\n\n

Usprkos svim zdravstvenim rizicima samo 3% oboljelih od celijakije se pravilno lije\u010di. \u010cesto treba i 11 godina dok se ne postavi to\u010dna dijagnoza bolesti. Mnogi i umiru od posljedica nelije\u010dene celijakije. Unato\u010d takvim podacima, ljudi, ali i zdravstveni radnici, relativno su malo svjesni prisutnosti celijakije kod svojih bolesnika. Brojni i razli\u010diti simptomi celijakije, u kombinaciji s malom svjesnosti o njoj, \u010desto vode do krivih dijagnoza i ozbiljnih posljedica za zdravlje. Bolje poznavanje ove bolesti i to\u010dniji postupci za njeno dijagnosticiranje pridonose njenom \u010de\u0161\u0107em otkrivanju. Dana\u0161nje znanje o celijakiji i odr\u017eavanju zdravlja s tom bole\u0161\u0107u je nedovoljno. U prilog tome govori i podatak da na 1 prepoznatog bolesnika dolazi 7 neprepoznatih, a oboljelih, kako je prethodno re\u010deno. Problem je i nedovoljna razina klini\u010dke sumnje lije\u010dnika na ovu bolest koja mo\u017ee imati te\u0161ki klini\u010dki tijek i ozbiljne posljedice, a prepoznata se lije\u010di lako, i to samo dijetom. Na celijakiju valja misliti \u010de\u0161\u0107e i raditi skrining mnogo \u010de\u0161\u0107e nego li se to sada radi.<\/p>\n\n\n\n

Celijakija ili glutenska enteropatija nasljedni je imunolo\u0161ko-posredovani poreme\u0107aj koji obilje\u017eava trajna nepodno\u0161ljivost glutena, bjelan\u010devine p\u0161enice, je\u010dma i ra\u017ei, a mo\u017eda i zobi. Jedna je od naj\u010de\u0161\u0107ih kroni\u010dnih gastroenterolo\u0161kih bolesti.<\/p>\n\n\n\n

Javit \u0107e se u osoba koje imaju nasljednu predispoziciju za ovu bolest, a jelovnik im sadr\u017ei proizvode od p\u0161enice, je\u010dma, ra\u017ei, a vjerojatno i zobi. O\u0161te\u0107enje sluznice tankog crijeva koje dugo traje mo\u017ee rezultirati razvojem vrlo te\u0161kih i \u017eivotno ugro\u017eavaju\u0107ih bolesti. U bolesnika u kojih je bolest prepoznata i lije\u010dena bezglutenskom dijetom jednaka je stopi obolijevanja i smrtnosti od te\u0161kih bolesti kao u zdravih ljudi, pojasnio je u kra\u0107im crtama portal PLIVAzdravlje.hr<\/a><\/strong>.<\/p>\n\n\n\n

\"\"<\/figure><\/div>\n\n\n\n

\u017dupanija Zapadnohercegova\u010dka uop\u0107e i ne zna statistiku oboljelih svoji sugra\u0111ana<\/span><\/strong><\/p>\n\n\n\n

Zavod za zdravstveno osiguranje \u017dZH potvrdio je za portal OTPOR<\/strong>.Media<\/strong> <\/span>kako oni imaju u svojoj evidenciji osobe oboljele od celijakije u dobi od 1 do 18 godine, kao i one osobe koje nastavljaju daljnje \u0161kolovanje tj. fakultet. Pravo na bezglutensku prehranu ostvaruju 34 osobe, i to pravo imaju osobe do 26 godine \u017eivota ako se redovno \u0161koluju. No taj broj je \u010dak i 4 puta ve\u0107i onih nemaju pravo ostvariti tu pomo\u0107 u \u017dZH a imaju celijakiju, te su prepu\u0161teni sami sebi da ju nabavljaju hranu i lijekove i snalaze se kako znaju bez pomo\u0107i \u017eupanije, gradova i op\u0107ina, a koja su vi\u0161estruko skuplja od standarne hrane koja se mo\u017ee na\u0107i na policama trgovina.

.<\/div><\/p>\n\n\n\n

Kontaktirali smo Zavod za javno zdravstvo \u017dZH kako bi od njih dobili to\u010dan broj oboljelih osoba od celijakije s nadom kako oni vode evidenciju o istima, ali od njih smo dobili jo\u0161 vi\u0161e pora\u017eavaju odgovor koji je glasio kako oni i ne znaju broj osoba oboljelih od celijakije u \u017dZH.<\/p>\n\n\n\n

S obzirom na to kako se \u017dZH vodi kao jedna od razvijenijih na podru\u010dju F BiH, osobe oboljele od celijakije, a koje su isto stanovnici te \u017eupanije nakon punoljetnosti tj. zavr\u0161etka \u0161kolovanja su prepu\u0161tene same sebi i na jednu stranu “odba\u010deni”!<\/p>\n\n\n\n

Mnogi od tih osoba ili nemaju primanja ili imaju kao i ve\u0107ina gra\u0111ana minimalna, tako da su prisiljeni svaki zara\u0111eni nov\u010di\u0107 potro\u0161iti u duplo ili troduplo skuplju ishranu, a o lijekovima da i ne pri\u010damo.<\/p>\n\n\n\n

Udruga iz \u017dZH koja sama broji 37 \u010dlanova, a pomo\u0107 minimalna ili nikakva, unato\u010d brojnim molbama<\/span><\/strong><\/p>\n\n\n\n

Udruga oboljelih od celijakije i osoba s invaliditetom “KRUH” Ljubu\u0161ki koja jedina djeluje i brine u na\u0161oj \u017dupaniji o tim osobama na podru\u010dju ima upisano 37 osoba oboljelih od celijakije kao \u010dlanove Udruge.<\/p>\n\n\n\n

Kako su za portal OTPOR.Media<\/span><\/strong> kazali iz Udruge “KRUH” Ljubu\u0161ki, pomo\u0107i od strane op\u0107inskih vlasti su minimalne unato\u010d brojnim molbama, ali ipak iskazuju zadovoljstvo da se bolje i malo pomogne, nego nikako!<\/p>\n\n\n\n

\"\"<\/figure><\/div>\n\n\n\n

“Grad Ljubu\u0161ki i \u0160iroki Brijeg u 2020. godini iskazali su minimalnu pomo\u0107 za \u010dlanove na\u0161e Udruge, obzirom na brojnost ne samo na\u0161ih \u010dlanova, nego i ostalih koji se bore s ovom bole\u0161\u0107u, je skoro pa nevidljiva! Potrebno je javnost vi\u0161e informirati s ovim zdravstvenim problemom i pote\u0161ko\u0107ama s kojima se susre\u0107u oboljeli od celijakije, a kojih je jako puno na na\u0161em podru\u010dju, pa tako i nadle\u017ene institucije da shvate va\u017enost probleme s kojim se susre\u0107u njihovi i na\u0161i sugra\u0111ani” kazali su nam iz Udruge.<\/p>\n\n\n\n

Dodajmo samo jedan od zadnjih primjera gdje Zavod za zdravstveno osiguranje Unsko-Sanskog Kantona redovno objavljuje Javni poziv za sudjelovanje u programu sufinanciranja nabavke bezglutenske i specijalne hrane na koju imaju pravo sve osobe oboljele od celijakije, bez obzira na godine starosti.<\/p>\n\n\n\n

Na kraju dolazimo do pora\u017eavaju\u0107e \u010dinjenice da na\u0161 Zavod za javno zdravstvo \u017dZH koji bi trebao voditi evidenciju i statistiku o oboljelim osobama sa svim oboljenjima o\u010dito ne vodi tu evidenciju jer nemaju to\u010dan broj osoba oboljelih od celijakije, a svi oboljeli koji nemaju mogu\u0107nost priu\u0161titi si posebnu ishranu prepu\u0161teni na kraju sami sebi i snala\u017eenjem na sve mogu\u0107e na\u010dine kako bi pre\u017eivjeli!<\/p>\n\n\n\n

Mili Maru\u0161i\u0107 \/ OTPOR.Media<\/span><\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"

Celijakija je naj\u010de\u0161\u0107a kroni\u010dna gastroenterolo\u0161ka bolest, ali se o njoj premalo govori i premalo zna. Mnogi oboljelih ne znaju da su bolesni, a ako se bolest ne lije\u010di mogu nastati ozbiljni zdravstveni problemi. Desetlje\u0107e za postavljanje dijagnoze Usprkos svim zdravstvenim rizicima samo 3% oboljelih od celijakije se pravilno lije\u010di. \u010cesto treba i 11 godina dok […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"iawp_total_views":0,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[31],"tags":[],"class_list":["post-15342","post","type-post","status-publish","format-standard","category-zdravlje"],"yoast_head":"\nTOLIKO O EVIDENCIJI: Namjernice za \u017eivot su im puno skuplje, \u017dZH nema stvarni broj tih osoba! - OTPOR.Media<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/otpor.media\/?p=15342\" \/>\n<meta property=\"og:locale\" content=\"hr_HR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"TOLIKO O EVIDENCIJI: Namjernice za \u017eivot su im puno skuplje, \u017dZH nema stvarni broj tih osoba!\" \/>\n<meta property=\"og:description\" content=\"Celijakija je naj\u010de\u0161\u0107a kroni\u010dna gastroenterolo\u0161ka bolest, ali se o njoj premalo govori i premalo zna. Mnogi oboljelih ne znaju da su bolesni, a ako se bolest ne lije\u010di mogu nastati ozbiljni zdravstveni problemi. 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